The Diving Bell and the Butterfly

Plot summary

On December 8, 1995, Bauby, the editor-in-chief of French Elle magazine, suffered a stroke and lapsed into a coma. He awoke 20 days later, mentally aware of his surroundings, but physically paralyzed with what is known as locked-in syndrome, with the only exception of some movement in his head and eyes. Further, his right eye had to be sewn up because of irritation. Bauby wrote the entire book by blinking his left eyelid, which took him two months working 3 hours a day, 7 days a week.[1] Using partner assisted scanning, a transcriber repeatedly recited a French language frequency-ordered alphabet (E, S, A, R, I, N, T, U, L, etc.), until Bauby blinked to choose the next letter. The book took Bauby about 200,000 blinks to write at an average of approximately two minutes per word. The book also chronicles everyday events for a person with locked-in syndrome. These events include playing at the beach with his family, getting a bath, and meeting visitors while in hospital at Berck-sur-Mer. On March 9, 1997, two days after the book was published, Bauby died of pneumonia.[2][3]


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